Coeliac UK’s Gut Awareness Week
I’ve been rather quiet this week. It’s a week that’s been Coeliac UK’s Gut Feeling Week aimed at raising awareness of diagnosing coeliac disease. Something that all too often goes undiagnosed for far too long, leaving people living both in agony and in ignorance of their condition. Believe it or not, medical diagnosis can take an average of 13 long years.
According to Coeliac UK, 1 in 100 people have coeliac disease however only 1 in 8 of those with the condition are diagnosed. They go on to say that over half a million people in the UK have coeliac disease but don’t know it. The aim of their current campaign is to target them to improve diagnosis and ensure they receive the care they need.
There has been a Motion tabled in Scottish parliament for MSPs to sign up to in support of the campaign which you can view here.
Back to me for a moment, I’ve been quiet because I don’t have coeliac disease and have been touched by the stories of those brave enough to reveal their private battles. All with the aim of raising awareness of a disease that has no cure but once you know you’ve got it you can adjust your diet accordingly and live a full life with it.
My own relatively short experience of intolerance to wheat and the affect it had on my health and general state of mind was to me a painful one. But it pails into insignificance with the stories I have read over the past week. Whether it was Becca Fetterman who thought she had “grown out” of coeliac disease (as told on Gluten Free by the Sea) or the varying tales of non diagnosis on Colieac.me.uk through to Gluten Free b’s reflection on life post diagnosis with coeliac.
They are all well worth a read and a moment’s contemplation.
What’s more important though, is if you or someone you know exhibit the symptoms mentioned in any of these stories, don’t suffer in silence, see your GP and don’t be brushed off.